SISTERS BOTH HAVE 1 IN 3.5M DISEASE THAT IS TURNING THEM TO CRYSTAL
Meet the sisters who have both been diagnosed with a one in 3.5-million condition which is slowly turning their bodies to crystal. Three-year-old Emily and her sister Poppy-Mae, 22 months, are among just 2,000 people in the world who have been diagnosed with the devastating disease cystinosis. The incurable condition is a genetic disorder that causes a build-up of the amino-acid cystine in the cells of the body. Over time these compounds crystallise in the cells, forming in the kidneys, the eyes, the thyroid gland and the liver. Without treatment, children with cystinosis are likely to experience complete kidney failure by about age ten. In the past, it was rare for people with cystinosis to survive into adulthood. But while the sisters will most certainly both face kidney transplants in later life, the brave tots are facing their uncertain future together. Mum Jessica Kemp, 25, from Leeds, said: "Basically their bodies are slowly being taken over by the crystals which build up in their cells. "Children with cystinosis don't have the best life expectancies but at least they each know what the other one is going through and they will always have someone around to look after them. "When Poppy-Mae was also diagnosed it was devastating, but now I'm glad in a way that they have each other for comfort."
Other great stories
THE FIRST LADY OF FASHION APP
She was recently named Best Dressed Woman in a new list and is regarded as one of the most stylish women in the world .
WOMAN SPENDS £20K A YEAR ON 30 PET PUGS
Meet the dog-loving woman who spends £20k a year looking after her 30 pet PUGS .
WOMAN LOSES 11ST AFTER £11K GASTRIC SLEEVE OP
A woman has shed half her body weight after undergoing a gastric sleeve op to shrink her stomach .
TRAPPED IN THE BODY OF A 10 YR OLD: TEENAGE GIRL BORN WITHOUT HORMONES
She is about to start driving and soon will be able to legally buy alcohol and get married, but Poppy Webb-Jones still looks and thinks like a ten-year-old girl .
SMILEY GECKO POSES FOR THE CAMERA
WITH A wide smile plastered across his face, this little gecko is ready for his close up .
REAL FRANKENSTEIN'S LAB
WELCOME to the real Frankenstein's lab where carefully pickled creatures are left to stew in jars .
WOMAN LEFT SCARRED FOR LIFE AFTER SETTING HER FACE ON FIRE WHILE LIGHTING A CIGARETTE
A mum-of-two has revealed how she accidentally set her face on fire while lighting a cigarette .
SNEAKY OTTER
A young otter wades through a lake with his eyes set on an older rival’s fish .
INCREDIBLE BABY DREAMS BROUGHT TO LIFE
WHETHER FLOATING through space or diving underwater, a lucky baby boy enjoys once in a life time experiences - in his DREAMS .
TRIPLE AMPUTEE SOLDIER FINDS LOVE WITH BLONDE BOMBSHELL RALLY DRIVER
A soldier who lost both legs and an arm in Afghanistan has found love with a blonde bombshell he met through his newfound passion for rally driving .
BOARDER” COLLIES AND SURF MAD MUTTS HIT THE WAVES
Dogs catch waves at the Coronado Bay dog surf championships Saturday 22nd June 2013- DOG SURFING mutts have never looked so gnarly .