SISTERS BOTH HAVE 1 IN 3.5M DISEASE THAT IS TURNING THEM TO CRYSTAL
Meet the sisters who have both been diagnosed with a one in 3.5-million condition which is slowly turning their bodies to crystal. Three-year-old Emily and her sister Poppy-Mae, 22 months, are among just 2,000 people in the world who have been diagnosed with the devastating disease cystinosis. The incurable condition is a genetic disorder that causes a build-up of the amino-acid cystine in the cells of the body. Over time these compounds crystallise in the cells, forming in the kidneys, the eyes, the thyroid gland and the liver. Without treatment, children with cystinosis are likely to experience complete kidney failure by about age ten. In the past, it was rare for people with cystinosis to survive into adulthood. But while the sisters will most certainly both face kidney transplants in later life, the brave tots are facing their uncertain future together. Mum Jessica Kemp, 25, from Leeds, said: "Basically their bodies are slowly being taken over by the crystals which build up in their cells. "Children with cystinosis don't have the best life expectancies but at least they each know what the other one is going through and they will always have someone around to look after them. "When Poppy-Mae was also diagnosed it was devastating, but now I'm glad in a way that they have each other for comfort."
Other great stories
GLACIER ICE CLIMBING
COURAGEOUS climbers descend 400 metres as they manoeuvre their way through thick walls of ice .
MUM LOSES 10 STONE AFTER SON ASKS IF SHE’S PREGNANT
A mum-of-three lost 10 stone after her son asked if she was pregnant .
VICTIM SLAMS SENTENCE AS THUG WALKS FREE FROM COURT
A woman brutally beaten in a revenge attack has slammed the soft sentence handed to her assailant .
N-ICE DAY FOR A WHITE WEDDING: COUPLE WED ON GLACIER
When couples talk about wanting a white wedding, few will be referring to getting hitched on a glacier sat on top of an active volcano .
APPY CAMPING: COOKING STOVE CHARGES SMARTPHONES
Here's a APPY solution that should brighten up a wet weekend away camping - a wood powered stove that also recharges your smartphone .
BABY GIVEN THREE PER CENT CHANCE OF LIFE COMES HOME FOR FIRST TIME
A baby who was given just a three per cent chance of survival at birth has beaten the odds to come home - even though docs told his parents to abort him 12 times .
I BLAME MYSELF FOR MY DAUGHTER’S ANOREXIA
WENDY Randall, 16, from Kent is now training to be a bodybuilder after recovering from anorexia .
MINI-CANE GUIDES BLIND LEXI
A BLIND school-girl whose growth has been stunted by a rare medical condition is finding her feet again with the help of a specially made mini-cane .
£10K SPOILT POOCHES - WOMAN SPENDS MORE ON DOGS THAN BOYFRIEND AT XMAS
Vikki Jose, 26 loves nothing more than lavishing gifts on her loved ones at Christmas time .
SMILING SHARKS
A lively lemon shark grins into the camera and showcases his impressive teeth .
OUT-STANDING FIREFIGHTER BREAKS ENDURANCE WORLD RECORD
A US firefighter has battled osteoarthritis and four hip replacements to break the world paddleboarding record .
GREAT-GRANDMA SPLASHES £48K ON FAKE BABY COLLECTION
A retired foster carer has spent a whopping £48k on her brood of lifelike dolls .