SISTERS BOTH HAVE 1 IN 3.5M DISEASE THAT IS TURNING THEM TO CRYSTAL
Meet the sisters who have both been diagnosed with a one in 3.5-million condition which is slowly turning their bodies to crystal. Three-year-old Emily and her sister Poppy-Mae, 22 months, are among just 2,000 people in the world who have been diagnosed with the devastating disease cystinosis. The incurable condition is a genetic disorder that causes a build-up of the amino-acid cystine in the cells of the body. Over time these compounds crystallise in the cells, forming in the kidneys, the eyes, the thyroid gland and the liver. Without treatment, children with cystinosis are likely to experience complete kidney failure by about age ten. In the past, it was rare for people with cystinosis to survive into adulthood. But while the sisters will most certainly both face kidney transplants in later life, the brave tots are facing their uncertain future together. Mum Jessica Kemp, 25, from Leeds, said: "Basically their bodies are slowly being taken over by the crystals which build up in their cells. "Children with cystinosis don't have the best life expectancies but at least they each know what the other one is going through and they will always have someone around to look after them. "When Poppy-Mae was also diagnosed it was devastating, but now I'm glad in a way that they have each other for comfort."
Other great stories
TUNNEL FOR VICTORY
What lies beneath this building site? Britain's great hope of winning the pre-WW2 arms race against Nazi Germany .
APPY CAMPING: COOKING STOVE CHARGES SMARTPHONES
Here's a APPY solution that should brighten up a wet weekend away camping - a wood powered stove that also recharges your smartphone .
SURREAL WILDLIFE
AN EXERCISING turtle and an ice-skating chick are hardly everyday exploits in the animal community .
TRAINEE DOC DUMPED FOR BEING CHUBBY - NOW HE'S A HUNKY BODYBUILDER
A medical student has gone from chunky to hunky after being dumped by his ex- girlfriend for being too 'chubby' .
AMAZING AURORA BOREALIS
A GLOWING range of greens and blues sweep across the sky in a spectacular display of light .
DEAD MEDIA: ARTIST CREATES SKULL OUT OF OBSOLETE VHS
If you're ever struggling to find a use for your old VHS tapes you might want to take a tip from this innovative artist .
TEMPLE OF ZOOM
WELCOME to the Temple of Zoom where you can “experience” sliding down a Mayan temple into shark infested waters .
ADORABLE NEWBORN SEALS PLAY IN SNOW
WITH THEIR adorable big round eyes and fluffy white fur, these baby seals are cute enough to melt any heart .
CAGE -FIGHTER BF FRACTURED MY EYE SOCKET, NOSE, BIT MY FACE AND FORCED ME TO MAKE HIM A SAUSAGE SARNIE AT KNIFEPOINT
After Leigh Hancock, 36, joined Fallon Bramall's boxing gym she owned with her husband, the pair took him under their wing .
HUMAN CCTV COP BUSTS 130 CRIMINALS
Meet the human CCTV: a PCSO with a memory for faces so sharp he has apprehended more than 130 suspects in the last year alone with his eagle eyed talents .
RAINBOW CAVES
WELCOME to the 750-foot deep rainbow cave that leaves visitors bewildered by its multi-coloured mood lighting .