SISTERS BOTH HAVE 1 IN 3.5M DISEASE THAT IS TURNING THEM TO CRYSTAL
Meet the sisters who have both been diagnosed with a one in 3.5-million condition which is slowly turning their bodies to crystal. Three-year-old Emily and her sister Poppy-Mae, 22 months, are among just 2,000 people in the world who have been diagnosed with the devastating disease cystinosis. The incurable condition is a genetic disorder that causes a build-up of the amino-acid cystine in the cells of the body. Over time these compounds crystallise in the cells, forming in the kidneys, the eyes, the thyroid gland and the liver. Without treatment, children with cystinosis are likely to experience complete kidney failure by about age ten. In the past, it was rare for people with cystinosis to survive into adulthood. But while the sisters will most certainly both face kidney transplants in later life, the brave tots are facing their uncertain future together. Mum Jessica Kemp, 25, from Leeds, said: "Basically their bodies are slowly being taken over by the crystals which build up in their cells. "Children with cystinosis don't have the best life expectancies but at least they each know what the other one is going through and they will always have someone around to look after them. "When Poppy-Mae was also diagnosed it was devastating, but now I'm glad in a way that they have each other for comfort."
Other great stories
FACES OF ORPHAN VICTIMS OF AGENT ORANGE
These are the faces of orphans suffering from the horrifying effects of chemical warfare .
HUBBY DRUGGED THEN RAPED ME FROM AGED 15 AND I GOT JUSTICE 30 YEARS LATER
Tina O’Brien, 54, from East Midlands, met Frederick Allchorne, now 62, when she was 15 .
FUNKY BUMP
HOTSPOT MEDIA - FUNKY BUMP: FROM MIRROR bellies to rainbow bumps these pregnancy casts of stone and bronze could be the funkiest way to preserve your bump for posterity .
SEXUALLY ABUSED AT 9 BY GRANDAD
A survivor of abuse has bravely waived her anonymity to tell how she was sexually assaulted from the age of nine - by her depraved grandad .
AMAZING AURORA BOREALIS
A GLOWING range of greens and blues sweep across the sky in a spectacular display of light .
ADORABLE OWLS SHELTER FROM THE RAIN
HUDDLING under a leaf, a pair of adorable Javan scops owls take shelter from the rain .
DAD SET ME AND MUM ON FIRE - MUM WAS BURNT 65% OF HER BODY AND DIED TWO YEARS LATER ON MY 21ST BIRTHDAY
Amanda Bohm, 22, and her mum, Janet, 58, were the best of friends .
WINKING SQUIRREL
BASKING in smug satisfaction, a confident squirrel gives a wink to the camera .
BOOM SHAKE SHAKE SHAKE THE ROOM
WELCOME to the 125 decibel boombox bus that could damage your hearing if you party too close to its giant speakers .
WOMAN LOSES 8ST TO DITCH 'FAT SISTER' TAG
A former takeaway addict, who once weighed 20st, has lost over 8st in a bid to ditch her ‘fat sister’ tag .
‘PEG-LEG’ AMPUTEE OVERCOMES BULLIES TO MODEL LINGERIE
An amputee who was cruelly nicknamed 'peg-leg' by school bullies has conquered her insecurities to become a model .
CUTEST PICTURES OF PUPPIES AND BABY EVER
HEART-MELTING shots of a French bulldog and a ten-month-old French baby could be the cutest you’re likely to see .