SISTERS BOTH HAVE 1 IN 3.5M DISEASE THAT IS TURNING THEM TO CRYSTAL
Meet the sisters who have both been diagnosed with a one in 3.5-million condition which is slowly turning their bodies to crystal. Three-year-old Emily and her sister Poppy-Mae, 22 months, are among just 2,000 people in the world who have been diagnosed with the devastating disease cystinosis. The incurable condition is a genetic disorder that causes a build-up of the amino-acid cystine in the cells of the body. Over time these compounds crystallise in the cells, forming in the kidneys, the eyes, the thyroid gland and the liver. Without treatment, children with cystinosis are likely to experience complete kidney failure by about age ten. In the past, it was rare for people with cystinosis to survive into adulthood. But while the sisters will most certainly both face kidney transplants in later life, the brave tots are facing their uncertain future together. Mum Jessica Kemp, 25, from Leeds, said: "Basically their bodies are slowly being taken over by the crystals which build up in their cells. "Children with cystinosis don't have the best life expectancies but at least they each know what the other one is going through and they will always have someone around to look after them. "When Poppy-Mae was also diagnosed it was devastating, but now I'm glad in a way that they have each other for comfort."
Other great stories
OTTER FAMILY FIGHT
Splashing around in the water, a mother otter and her son are tangled in a family feud .
BETRAYED BY CANCER CON WOMAN!
Recovering from a rare form of breast cancer, Deborah Barnett, 43, of Stoke-on-Trent, thought she'd made it through the worst, but she was betrayed by former colleague Sandra Ramsay, of Mow Cop Road, Mow Cop, Stoke-on-Trent .
EUROSTAR-BUCKS
THIS ONE of a kind experience brings a whole new meaning to the phrase 'a coffee to go' .
BOY, 6, ALMOST BLIND AFTER ONE-IN-MILLION ALLERGIC REACTION
A six-year-old boy has been left almost blind after a one-in-a-million allergic reaction to antibiotics .
8-YEAR-OLD GIRL ALLERGIC TO THE COLD
A young girl has been forced to stay indoors this winter because a rare allergy to the cold could kill her .
SQUIRRELS SQUABBLE OVER LUNCH
SQUABBLING over the last piece of grain, these hungry squirrels are determined to stock up on as much food as possible .
MONSTER EX LEFT ME FOR DEAD AND BATTERED ME UNRECOGNISABLE AFTER BRUTAL 10HR ATTACK
Amber Baskerville, 30, started dating Craig Chard, 34, in October 2021 .
CARE WORKER WHO BROKE SPINE IN ‘SHINING’ SEX ATTACK CALLS FOR TOUGHER SAFETY MEASURES
A care worker who broke her spine after jumping from a window to escape a sex attack at the hands of a resident has called for tougher safety measures to protect care staff .
BRAVEHEART: BABY GIRL SURVIVES HEART SWELLING TO SIZE OF ORANGE
A baby girl has become the youngest British patient to receive a life-saving cardiac operation after her heart swelled to twice its normal size within days of her birth .
BABY BEARS COPY FIGHTING ADULTS
SITTING quietly at the edge of the lake, these two baby bears watch and learn as the adults hunt for fish .
FRIENDS REUNITED
IT'S the iconic TV show that influenced a whole generation in the 1990s .
REVELLER'S NEW BEST FRIEND
Pic By HotSpot Media - REVELLER'S NEW BEST FRIEND -IN PIC- MEET the revellers new best friend – an interactive sign that will direct you to the nearest happy hour .