SISTERS BOTH HAVE 1 IN 3.5M DISEASE THAT IS TURNING THEM TO CRYSTAL
Meet the sisters who have both been diagnosed with a one in 3.5-million condition which is slowly turning their bodies to crystal. Three-year-old Emily and her sister Poppy-Mae, 22 months, are among just 2,000 people in the world who have been diagnosed with the devastating disease cystinosis. The incurable condition is a genetic disorder that causes a build-up of the amino-acid cystine in the cells of the body. Over time these compounds crystallise in the cells, forming in the kidneys, the eyes, the thyroid gland and the liver. Without treatment, children with cystinosis are likely to experience complete kidney failure by about age ten. In the past, it was rare for people with cystinosis to survive into adulthood. But while the sisters will most certainly both face kidney transplants in later life, the brave tots are facing their uncertain future together. Mum Jessica Kemp, 25, from Leeds, said: "Basically their bodies are slowly being taken over by the crystals which build up in their cells. "Children with cystinosis don't have the best life expectancies but at least they each know what the other one is going through and they will always have someone around to look after them. "When Poppy-Mae was also diagnosed it was devastating, but now I'm glad in a way that they have each other for comfort."
Other great stories
PARROT RIDES ON THE TUBE
Pic By HotSpot Media - PARROT RIDES ON THE TUBE - THIS pretty boy could be forgiven for forgetting his Oyst-aaarrrgh-card .
ARTIST NAILS IT- BEAUTIFUL PORTRAITS CREATED FROM NAILS
An artist has NAILED IT by creating beautiful and perfectly precise artwork using a hammer and 30,000 nails .
HOLY COW! DARING FARMERS IN THRILLING CATTLE RACE
An Indonesian farmer is dragged through muddy water as he clings to the tails of two charging cows .
COUGAR: I FELL FOR MAN 18YRS MY JUNIOR BUT MY SONS DIDN'T COME TO OUR WEDDING
A woman has revealed how she left her husband of 24 years, after falling in love with a man, 18 years her junior .
BAITBALL READY TO POP
LIKE A living balloon this baitball of sardines is ready to burst when threatened by a pointy nosed sailfish .
HUNGRY TURTLE ATTRACTS AN AUDIENCE
SURROUNDED by divers, a hungry green sea turtle enjoys being the centre of attention .
BRAVE DIVER FEEDS SHARKS DEADLY FISH
A diver attempts to control rising numbers of lionfish by feeding the venomous species to Caribbean reef sharks .
BRANDED BY VICIOUS BOYFRIEND'S SOVEREIGN RING
A deranged dad beat his girlfriend so savagely in a vicious 30 minute attack that the indent of his sovereign ring was left on her face .
TRANS-WOMAN WITH £180K BODY CAN’T FIND LOVE
A transgender model, who has spent £180k on surgery to become a ‘desirable’ woman, has told of her struggle to find a man who is openly accepting of trans-women .
SOMERSET FLOODING
Villages on the Somerset Levels have faced weeks of flooding with no respite from the conditions in sight .
WOMAN TOLD BY EMIRATES STAFF SHE’D BE ‘BANGED UP ABROAD’ OVER DIAZEPAM
A woman with a fear of flying claims she was humiliated after an Emirates airline staff member told her she could ‘go to prison for four years’ for possessing diazepam medication .