SISTERS BOTH HAVE 1 IN 3.5M DISEASE THAT IS TURNING THEM TO CRYSTAL
Meet the sisters who have both been diagnosed with a one in 3.5-million condition which is slowly turning their bodies to crystal. Three-year-old Emily and her sister Poppy-Mae, 22 months, are among just 2,000 people in the world who have been diagnosed with the devastating disease cystinosis. The incurable condition is a genetic disorder that causes a build-up of the amino-acid cystine in the cells of the body. Over time these compounds crystallise in the cells, forming in the kidneys, the eyes, the thyroid gland and the liver. Without treatment, children with cystinosis are likely to experience complete kidney failure by about age ten. In the past, it was rare for people with cystinosis to survive into adulthood. But while the sisters will most certainly both face kidney transplants in later life, the brave tots are facing their uncertain future together. Mum Jessica Kemp, 25, from Leeds, said: "Basically their bodies are slowly being taken over by the crystals which build up in their cells. "Children with cystinosis don't have the best life expectancies but at least they each know what the other one is going through and they will always have someone around to look after them. "When Poppy-Mae was also diagnosed it was devastating, but now I'm glad in a way that they have each other for comfort."
Other great stories
EVIL MONSTER KILLED MY DAUGHTER OVER SECRET ABORTION
The mother of a young woman stabbed 26 times by her ex-partner for having a secret abortion has told how her daughter was cruelly betrayed by her own social worker .
I’M NOT DRUNK, I'M A REAL LIFE SLEEPING BEAUTY!
Several times a year, Gemma, 21, can be found mumbling her words and struggling to concentrate as she walks around in a dream-like state .
SWALLOW WHOLE - YOUNG BIRD ENJOYS DINNER TIME
PERCHING on top of a gate, this young barn swallow waits patiently for his mum to return with dinner .
WORLD’S FASTEST AMPHIBIOUS CAR
Pic By HotSpot Media - WORLD’S FASTEST AMPHIBIOUS CAR -IN PIC- THE FASTEST amphibious car in the world is capable of a hair-raising 44 miles-per-hour on the water .
WOMAN LOSES 8ST AFTER ENERGY DRINK HABIT NEARLY BLINDS HER
A diabetic who was addicted to energy drinks has lost 8st after doctors warned her habit was blinding her .
FOUR-YEAR-OLD TWIN BOY BELIEVES HE'S A GIRL
A mum from Gloucestershire has accepted her four-year-old twin son’s decision to live full time as a girl - and is now letting him wear a skirt to school .
ABANDONED WILD WEST THEME PARK
The gunslingers are long gone and tumbleweeds have taken over at this abandoned American Wild West Theme Park in Cornwall .
WOMAN DISCOVERS PREGNANCY…AS HER BABY BEGINS CROWNING
A support worker was stunned to discover she was eight months pregnant after she was rushed to hospital with 'stomach cramps' .
ADORABLE BABY ORANGUTAN PLAYS WITH MUM
TUGGING at his exhausted mum's ears, a beautiful baby orangutan refuses to settle for a nap as he begins a game of peek-a-boo .
THE END OF THE WORLD CINEMA
SITTING in the middle of a vast desert, an abandoned cinema is still waiting for its first movie to be screened .
CARE WORKER WHO BROKE SPINE IN ‘SHINING’ SEX ATTACK CALLS FOR TOUGHER SAFETY MEASURES
A care worker who broke her spine after jumping from a window to escape a sex attack at the hands of a resident has called for tougher safety measures to protect care staff .