SISTERS BOTH HAVE 1 IN 3.5M DISEASE THAT IS TURNING THEM TO CRYSTAL
Meet the sisters who have both been diagnosed with a one in 3.5-million condition which is slowly turning their bodies to crystal. Three-year-old Emily and her sister Poppy-Mae, 22 months, are among just 2,000 people in the world who have been diagnosed with the devastating disease cystinosis. The incurable condition is a genetic disorder that causes a build-up of the amino-acid cystine in the cells of the body. Over time these compounds crystallise in the cells, forming in the kidneys, the eyes, the thyroid gland and the liver. Without treatment, children with cystinosis are likely to experience complete kidney failure by about age ten. In the past, it was rare for people with cystinosis to survive into adulthood. But while the sisters will most certainly both face kidney transplants in later life, the brave tots are facing their uncertain future together. Mum Jessica Kemp, 25, from Leeds, said: "Basically their bodies are slowly being taken over by the crystals which build up in their cells. "Children with cystinosis don't have the best life expectancies but at least they each know what the other one is going through and they will always have someone around to look after them. "When Poppy-Mae was also diagnosed it was devastating, but now I'm glad in a way that they have each other for comfort."
Other great stories
HAPPILY UN-COUPLED - JILTED WOMAN THROWS DIVORCE PARTY
A woman has celebrated the end of her marriage to her unfaithful husband by throwing herself a DIVORCE PARTY .
WAVES FROZEN IN TIME
Beautiful turquoise waves rise and fall in a series of stunning images taken along the coastline of south-eastern Australia .
DOUBLE OR NOTHING: TWINS SPEND £150,000 TO LOOK IDENTICAL
TWIN SISTERS from Australia have taken their sisterly bond to the extreme by spending £150,000 to look IDENTICAL .
FROZEN WATERFALLS
COURAGEOUS CLIMBERS scale frozen waterfalls in Canada, as the ice threatens to collapse beneath them .
EXERCISING OTTERS
A group of otters put on a show of aqua aerobics, as they raise their flippers perfectly in sync .
HUMAN CCTV COP BUSTS 130 CRIMINALS
Meet the human CCTV: a PCSO with a memory for faces so sharp he has apprehended more than 130 suspects in the last year alone with his eagle eyed talents .
FLYING PENGUINS LEAP OUT OF THE OCEAN
Leaping out of the ocean, a group of gentoo penguins fly through the air before landing safely on an iceberg .
STUNNING BRITISH AUTUMN LANDSCAPES
From the rolling hills of the Brecon Beacons to the still waters in the Lake District, these photographs capture autumnal landscapes across Great Britain perfectly .
HMS ARK ROYAL ARRIVES AT SHIP GRAVEYARD- LANGUISHING
HMS Ark Royal arrives in the Turkish port of Aliaga at the ship scrapping firm Leyal’s yard .
SCUBA-DUPER DIVER BREAKS RECORD FOR 50 HOURS UNDERWATER
A British diver has set a new world record for the longest warm water scuba dive by spending a mammoth 49 hours and 56 minutes under water .
CARE WORKER WHO BROKE SPINE IN ‘SHINING’ SEX ATTACK CALLS FOR TOUGHER SAFETY MEASURES
A care worker who broke her spine after jumping from a window to escape a sex attack at the hands of a resident has called for tougher safety measures to protect care staff .
WOMAN DESPERATE TO LOOK LIKE CHERYL COLE OVERCOMES ANOREXIA
A woman who starved herself to look like Cheryl Cole has told how she shrunk to just under 5st 13lbs after developing anorexia .