View story

More stories

SISTERS BOTH HAVE 1 IN 3.5M DISEASE THAT IS TURNING THEM TO CRYSTAL

Meet the sisters who have both been diagnosed with a one in 3.5-million condition which is slowly turning their bodies to crystal. Three-year-old Emily and her sister Poppy-Mae, 22 months, are among just 2,000 people in the world who have been diagnosed with the devastating disease cystinosis. The incurable condition is a genetic disorder that causes a build-up of the amino-acid cystine in the cells of the body. Over time these compounds crystallise in the cells, forming in the kidneys, the eyes, the thyroid gland and the liver. Without treatment, children with cystinosis are likely to experience complete kidney failure by about age ten. In the past, it was rare for people with cystinosis to survive into adulthood. But while the sisters will most certainly both face kidney transplants in later life, the brave tots are facing their uncertain future together. Mum Jessica Kemp, 25, from Leeds, said: Basically their bodies are slowly being taken over by the crystals which build up in their cells. Children with cystinosis dont have the best life expectancies but at least they each know what the other one is going through and they will always have someone around to look after them. When Poppy-Mae was also diagnosed it was devastating, but now Im glad in a way that they have each other for comfort.

Evil ex stalked my daught...

View this story

Boy age 5 is midwife to b...

View this story

Baby given three per cent...

View this story

School bullies won't stop...

View this story

Teenager groomed for sex ...

View this story

I lost 13 stone after ex ...

View this story

Desperate for a thigh gap...

View this story

Super tot – bizarre bab...

View this story

Woman discovers pregnancy...

View this story

Woman spends £10k transf...

View this story